Hockey is back!

So, I know it has been awhile and I apologize. Em has been doing ok since my last blog. The only main issue has been her allergies going haywire! And by haywire I don't just mean a little bit I mean completely NUTS. We have since been to the allergist a few times and he has now upped her allergy meds to include allegra, zyrtec, nasonex, sudafed, and flovent. All of this for such a little girl. But I do think it is finally starting to work. Thank goodness. Emmie really was losing a lot of sleep with the congestion all being stuck in her sinuses. We have an upcoming PFT on October 6th to determine whether the flovent is controlling the air trapping. Hopefully it is and continues to do so.

On another note hockey is for sure back in full swing. Miss Princess made her debut with the "new" Delta College Hockey team, (and by new I mean at least 15 incoming freshman)! The DC Hockey boys have always been amazing upstanding boys (men) who work very hard to fundraise to help to cure CF. I think this team will be just as good if not better than previous teams. Hockey players really do have hearts of gold, all of them. These new boys took the time to meet Emmie tonight, all attempting to learn about this disease. They welcomed her as their new "cheerleader" and even took her out on the ice for the national anthem. Needless to say Emmie had a great night. She was quite upset when she had to leave to go home and get treatments. The GREAT NEWS being that the DC Hockey boys pulled their first win of the season tonight!!!!!!! Great job boys! Keep it up! Emmie is cheering you on thats for sure!

For tonight that is all, tired yet still excited about our win!
Love,
Melissa and Emmie!

Surgery fiasco

Emmie had her appointment with the pediatric surgeon today. The good news is that he thought he may have been able to fix the girl problem in the office, however he did not want to traumatize her. I like that program! I don't like the fact that we now have to have surgery to fix it. The surgeon does not want to wait until we have adenoid surgery to fix the girl problem so surgery is scheduled for Monday. Yup 6 (almost 5) days from now. Although I do find relief in the fact that it is a 2 second surgery. So on to the fiasco part.

Emmie is also due for her pulmonary function test (PFT) in August. We can not do the adenoid surgery just prior to having this test for risks of opening things back up after they have not fully healed. So, I believe what will be happening is that we will go for our currently scheduled clinic visit on the 6th of August get clearance for surgery, attempt to get our PFT done as soon after that as possible and still maintain our surgery clearance, then re-schedule our adenoid surgery as soon as possible after that. If it does not work out that well and we for some reason lose our clearance for surgery or it has taken too long for all of this to happen we will have to wait for November to get clearance again and then do the adenoid surgery.

I am actually on the fence about this particular surgery for the simple fact that we just purchased a Holmes Air Purifier b/c of the recommendation of Emmies allergist. Since running that in the bedroom Emmie has not been snoring or having a "stucky" nose. I find that very reassuring. I will have her pulmonologist evaluate her in August for her opinion but as of now am feeling much better about the situation.

I think that is all for now. Prayers for a successful surgery, and speedy recovery.

Love,
Melissa, Emmie, and Jason too!