Sunday, May 9, 2010

Mothers Day

Today I am blessed to have a very beautiful, and very strong little girl. Everyday she makes me laugh, giggle, and love her even more than the day before. I watch everything that she goes through on a daily basis and wonder why? However I also know that it will make her a very strong young woman as she gets older. CF teaches kids to be strong and very loving people. I think that is it for today, just wanted to get that out there I feel like I have the most amazing daughter anyone could ask for, and would not change it for the world!

Saturday, May 8, 2010

Here we go!

So here we go. I have no idea what I am doing, or how to do this but I will give it a go! So the whole point of doing this is to keep all people updated on Miss Emmie, and secondly for me to be able to get off my chest all the frustration that goes along with a genetic disease.
Emmie had her clinic visit yesterday at U of M, and even though it was an early appointment (7:40am) it went well. She is up 3 lbs since last visit (February). Also, she is up just over an inch! Yeah for pediasure since she still isn't eating much in the line of solids. We have determined that the source of her current fever since 4-28-10 is e.coli. Wonderful I know, right? So even though we just came off a 21 day run of Bactrim we are now back on it for another 10 days to get rid of lovely Mr. E.coli. It showed up in her urine for sure, still waiting on the stool results. On top of all that funness we also have developed thrush from her Flovent, causing us to put her on oral Nystatin as well. Clinic decided also to change her enzymes because her current Ultrase MT-12 is not FDA approved. Now it is on to Creon!

A week ago Emmie had her first allergist appointment, and he decided that she is allergic to grass, trees, molds, ragweed, and mites. Even better right! So he is putting her on another med for asthma and allergies.

So I guess that is all for now, I will update more as I have the time!